Hello all. It has been what has felt like the longest week ever waiting on results…and I’m happy to say that we have them today. Continue reading
This week
Hey guys…just a quick note to fill you in on what’s going on this week. Continue reading
Checking In
Hi friends and fam. So sorry I’ve been absent..just so much going on and a lot of waiting and unanswered questions on top of it all. I don’t really have a ton to update you on..but thought I’d just let you know what’s been going on these last three weeks. Continue reading
Treatment Update
Hello all…hope you’re well and staying warm. Just waiting to head out of NYC and thought I’d shoot you an update… Continue reading
Scans + Bloodwork Update
We are headed back from a few days in NYC. Will start by saying that we made some unbelievably special memories with the two big kids. What a gift to have them there with us. We are leaving feeling very grateful for this time! Continue reading
Honoring St Jude
No real update to share, you guys. Just feeling like writing as my heart is so touched today. Continue reading
Blood Work Update
Hello all-
We just spoke with Nicks IR about the results from the bloodwork Nick had done on Tuesday. Nicks AFP, or tumor marker, is back up from 520 to 645. Continue reading
Treatment #3
Hi friends and fam…I hope this note finds you all well! We are on a flight back home from a couple days in NYC..thought I’d update you. Continue reading
AFP Update
Just a quick check in for all of my fellow number junkies:) We got word today that Nicks bloodwork from last week is showing that his AFP has dropped down to 520! It’s down another 150! And while I’m no expert, this leads us all to believe that the Y90 beads are still working on those tumors. This is incredible news! Continue reading
Scan Results
Hello, all! Wanted to share an update as Nick had his scans on Monday. The tumor board, which includes his interventional radiologist and transplant surgeon among many others, have reviewed them and we’ve talked through the results. As you know, just to recap, Nick has five tumors on his liver. Two are very large and are taking up the bulk of the masses. Nick has had two Y90 treatments thus far..one for each of the two largest tumors (which are not too different in size). Here what we know… Continue reading
