Hi friends and fam…I hope this note finds you all well! We are on a flight back home from a couple days in NYC..thought I’d update you.
Nick had his TACE treatment on Monday. The procedure went well and based on imaging, his Interventional Radiologist is very pleased with the placement of the beads. He felt he was able to target the first tumors remains right where he hoped to, so that is wonderful news.
Nick did great and is feeling pretty good, all things considered. The difference in potential side effects between this TACE treatment vs the Y90 he’s had the other two times isn’t much…fatigue, potential pain at the site of incision or site of the tumors, and low grade fever are all possible side effects. The difference is that this TACE treatment works very quickly, like within days, to kill tumor whereas the Y90 works over weeks or months, even. Nick has felt a little pain on and off in his liver over the last couple days which his IR warned us of…and hopefully that is him feeling tumor death. He’s also been tired..all to be expected. He says it’s nothing unmanageable and his IR says these symptoms should subside within a week. In my opinion he seems to be doing wonderfully post treatment and it will be good for him to get back home so he can rest and sleep in our own cozy bed:)
We had some great chats with both Nicks Interventional Radiologist and Transplant Surgeon. There’s really nothing crazy new for me to share…but they are both just very happy with the way Nick has been responding to treatments. We talked about a ton of “what if’s” and what it all boils down to is that this could all go a million different ways. There are an insane amount of possible scenarios that could play out and our plans will have to stay bloodwork to bloodwork, scan to scan and phone call to phone call. They really think that this last treatment has the potential to get Nick to a place where they could get him listed for transplant…and my gosh we hope and pray that’s the case. We won’t know anything until bloodwork in two weeks and scans in about a month.
Our discussions included how long this process could take, or how quickly and urgently it could all go. How a deceased imperfect liver is something we may have to consider, or how a living donor option could miraculously be brought back on the table. Logistics, best case scenarios and worst case ones, too. What would happen if we got the call and had to be there in 4 hours or we lose a liver, what would we do with the kids, where would we stay, how would we possibly manage this all. We talked enough to make our heads spin, but at the end of the day we are leaving with one concrete plan: day by day.
Nick reminded me on Monday, right before his treatment procedure, that it was exactly 5 months on the nose from the moment he was diagnosed. While we don’t know how five months can possibly pass by so quickly, we have experienced and learned so much over this time. And one thing we’ve gotten really good at is trusting the process, and Nicks medical team. We don’t have any concrete answers. We don’t have a set plan. We have no idea what life will look like next month, in six months or six years. But we know Nick feels good today. We know we have the most incredible care team who is whole heartedly devoted to standing up for Nick and holding our hands through every step of this. And we have all of your love, prayers and support. I’d say we are in pretty good shape, you guys. Nick and I promised each other we’d live these next five months like we’ve lived the last five: faithful, trusting and as contently as we are able. And do you know who’s been our greatest teachers and encouragers of this? Our beautiful, patient kiddos. Boy have they been incredible these last five months ❤️
So, that’s it. The ball is still rolling. We still have more waiting to do. Nicks still the biggest champ in the world. And we still have an awful lot of hope and gratitude. All such good things! I will absolutely let you know if anything comes up and will update you in a couple weeks when we get bloodwork results.
We hope you are all having a wonderful start to fall. While it’s probably starting to sound redundant, I won’t ever stop thanking you all for your care and concern. Your hearts have totally blessed ours in so many ways. Sending you so much love! Xo