Well, we finally received the results from the Interventional Radiologist for Nicks AFP (tumor marker)…and I am so relieved to report that the number is down! Nicks AFP was around 1050 three weeks ago, and Friday’s bloodwork is showing its down to 678. The IR feels that his numbers are showing “solid progress”…but also said that sometimes the numbers can be misleading so the MRI scheduled on the 9th will show us where we really stand. All in all, we are taking today as a big fat win!

Just to recap, we need to get Nicks AFP down in order for his case to be even slightly considered for a transplant. In a perfect world, his AFP would be as low as 250…studies show that when patients go to transplant with AFPs above 250, their risk of the cancer reoccurring increases. Nicks transplant surgeon really thinks he could make a case for transplant if we got it down to 500, tho. At least this was his thoughts prior to starting treatment. All of this being said, his AFP isn’t all that matters. We need to see how things look in his MRI. Once the scans are done his team of physicians will be better able to plot out next steps. So SO many moving parts, but today’s news feels so hopeful and positive.

Nick is still feeling pretty darn good…such a champ. Trying to keep as busy as possible in these waiting days and he’s waking up and choosing happiness each and every day, which is such a beautiful thing to witness.

So now we continue to wait until 9/9 scans. Until then, we will keep hope and faith front and center. Thank you all for your constant prayers…we really and truly feel them carrying us along. I will be sure to update you if anything comes up. Enjoy these last days of summer…lots of love to you all! Xoxo

Just a quick update for those of you asking… Continue reading →

Hi friends and fam. It’s been a good few days in NYC. Here’s the lowdown.. Continue reading →

Haven’t written in a while, so thought I’d drop a few lines to touch base. I hope this update finds you well! Continue reading →

I hope this post finds you all well. It’s so hard to believe we are halfway done with summer..where is the time going? I hope these last few months have been wonderful for you! Continue reading →

Hello family and friends…hope this update finds you well!

Nick had his first Y90 treatment at Cornell on Tuesday. The treatment procedure went well and as expected..the beads went almost exactly where they showed in the mapping. Nick is feeling ok…he’s beyond exhausted and sore and probably will be for the next week, but no other symptoms of concern at this point which is positive. Continue reading →

We are still at the hospital after a long day, but the treatment mapping and scans are done…Nick is feeling tired but really good overall, and I think we both feel great knowing the plan. He’s just laying down resting right now, we are hoping to be discharged in a few hours. Continue reading →

We spoke with the doctor today with regard to both Nicks scan results and the tumor board meeting that was held on Wednesday to discuss Nicks case. Continue reading →

Just making our way to the airport to head home after a few days of evaluations and scans at Cornell. Not a ton to update you on, but here’s what we know… Continue reading →

What a day. We had 7 appointments and are leaving Cornell grateful to have been led here. In a nutshell, we feel we have finally found Nicks medical team. I can’t quite put into words the experience we had today..at one point I told Nick I wish it was all being recorded because there is no way for me to translate how this team operated together, with us and the knowledge we gained…but I’ll do my best. Let’s just say that as we left, we both plopped into the cab and cried together. Hopeful, incredibly grateful tears. Continue reading →