Just a quick check in for all of my fellow number junkies:) We got word today that Nicks bloodwork from last week is showing that his AFP has dropped down to 520! It’s down another 150! And while I’m no expert, this leads us all to believe that the Y90 beads are still working on those tumors. This is incredible news!
I know I’ve told you this before, but Nicks transplant surgeon told us a few months back that he feels if we could get Nicks AFP down to 500 he would have a case to present to the board for Nick with regard to getting listed for a transplant. Going into transplant, an AFP of 250 or less is ideal for many reasons, but his surgeon felt that if he was down around 500 and able to prove that Nick is responding to treatment he could at least have some ground to stand on in his conviction to get Nick listed.
As of now, none of our plan is changing. They will still treat Nick on the 30th and then likely do scans again around a month after. When we are out there for his treatment we will chat with his transplant surgeon and get a better feel for his thoughts on Nick getting listed, pending his AFP stays in check.
Big win today, in my opinion. Seeing his AFP continue to drop is such beautiful news! We will sit tight until the 30th and continue to make sure Nick is taking wonderful care of himself. Keep you posted if anything comes up:) So much love to you all xoxo