Hi friends and fam. It’s been a good few days in NYC. Here’s the lowdown.. Continue reading →

Haven’t written in a while, so thought I’d drop a few lines to touch base. I hope this update finds you well! Continue reading →

I hope this post finds you all well. It’s so hard to believe we are halfway done with summer..where is the time going? I hope these last few months have been wonderful for you! Continue reading →

Hello family and friends…hope this update finds you well!

Nick had his first Y90 treatment at Cornell on Tuesday. The treatment procedure went well and as expected..the beads went almost exactly where they showed in the mapping. Nick is feeling ok…he’s beyond exhausted and sore and probably will be for the next week, but no other symptoms of concern at this point which is positive. Continue reading →

We are still at the hospital after a long day, but the treatment mapping and scans are done…Nick is feeling tired but really good overall, and I think we both feel great knowing the plan. He’s just laying down resting right now, we are hoping to be discharged in a few hours. Continue reading →

We spoke with the doctor today with regard to both Nicks scan results and the tumor board meeting that was held on Wednesday to discuss Nicks case. Continue reading →

Just making our way to the airport to head home after a few days of evaluations and scans at Cornell. Not a ton to update you on, but here’s what we know… Continue reading →

What a day. We had 7 appointments and are leaving Cornell grateful to have been led here. In a nutshell, we feel we have finally found Nicks medical team. I can’t quite put into words the experience we had today..at one point I told Nick I wish it was all being recorded because there is no way for me to translate how this team operated together, with us and the knowledge we gained…but I’ll do my best. Let’s just say that as we left, we both plopped into the cab and cried together. Hopeful, incredibly grateful tears. Continue reading →

Not much time over here but wanted to let you know that we are heading to NYC tomorrow for a Thursday full of several appointments and evaluations for Nick with regard to a living donor opportunity at New York Presbyterian. The surgeon in Toronto was so incredibly kind to get us in touch with a colleague/transplant surgeon at Cornell and we are so anxious to meet with him as all of the literature and research that we’ve read of his leaves us confident in his opinions and experience. We are praying he may have loop holes around the guidelines for a US based transplant that were discussed with us at Mayo..but more than anything, we are just hoping to get clarity and confidence on how best to move forward.

We will absolutely keep you posted…sending you hugs xo

We just met with the surgeon in Toronto, lots of information but I’ll give you the short of it. This physician wouldn’t feel comfortable doing a transplant on Nick until Nicks been treated to some degree first, for a multitude of reasons, but mainly because of the need to see how the tumors respond to treatment and to get a better idea of the biology behind Nicks tumors. He recommended we enroll Nick in the clinic trial at the U for TACE treatment (praying this is a confirmed option). After Nicks treatment he would give his body about 3 months to respond, and if all looked good at that point and Nick was responding positively we would begin the transplant process. The surgeon made it very clear that he understands our sense of urgency, but that transplant in a patient like Nick can not be rushed as there is much risk that could come with rushing all of this. Continue reading →